First we will start with Riley: The doc said that he does not have Epilepcy now, this is something that could change in the future (how ever you spell that). Okay so that's the good news. The MRI came back normal...another sign of good news. The EEG came back abnormal. It showed signs of slowing brainwaves at times. While these weren't enough to consider them seizures, they were enough to consider them abnormal. If he has more visibile or more intense silent seizures we will have to do a sleep study and a 24 hr. EEG. We are waiting on his blood test results, I will have to dig in and do a bunch of follow up, this is important at this point. Critically so. If he is dumping too many proteins in his blood to, we will have to speak with a kidney doc and a dietician. Sunshine will have to change his diet and we will have to monitor more closly what he eats. By the way..stupid fact of the day. Did you know that 5 gummy worms have 3 grams of protein in them. Good thing to know if you are ever lost in the woods for an extended amount of time and only have gummy worms to eat. I'm very happy with the help that Dr. S gave us. While we are back to square one, we know that it isn't necessarily his brain causing the problem. We are going back to diet now. We need to see what we can do. I guess it is time to look up diet and autism.
THen we went to Duck's aunt house. Everytime we are there she keeps telling me we should apply for disability for him. Why? Why is it any of your business? I can understand the first or maybe the second time, but I don't need her doing research for me telling me that I quality when I've been told by other not to waste my time, he doesn't. We don't need it anyway. While we struggle a bit when we make bad decisions, Jah takes care of us. He provides everything we need and when we seem to need a bit more he shows us how to make it. Them more money you have the more problems you have PERIOD. Granted I say that and I asked for more money at work, only because when Duck looses his unemployment we will not make enough to pay our basic montly bills. I'm only asking enough to pay my bills, everything else we will have to worry about then. Which is another reason as to why my pantry is stocked and my freezers are overflowing...literally.
We then met up with my very prego friend K who gave 3 of us hair cuts. It has been two years, she said I had a lot of breakages, but I needed to switch shampoo and conditionars every three days. Like use Suave (which has a high alcohol content) for two days and then use a better one the 3rd day. This would help, I'm going to look into this too! We had fun we first met up for lunch and then we to the salon. Sunshine didn't freak out as much as he usually does. Of course he wasn't asked to sit in the chair either. It was so nice to see her. When she has the baby I'm going to go up and see her. She did the same for me, she was one of the only ones who visited me in the hospital when I had Sunshine. Even my best friend at the time didn't come up. K has really been a good friend over the years.
Then we met up with JM, it was so much fun, I haven't seen her in 18 months. She bought us dinner and we sat at Pizza Hut for about 2 hours talking. I got to give her a wonderful witness, she asked questions and I had the pleasure of answering. It was truly moving! I love her to death, she has always been there for me through thick and thin. She is a wonderful and amazing woman.
Then we decided to meet up with my mother. We called Aunt S for the number since I forgot to write it down and quite frankly I thought we'd be leaving town well before then. So we met up with them at McDonald's she looks terrible, sounds terrible. I'm really happy she could see her grandchildren. She has osteoperious (again spelling), diabetes, emphazema and a slue of other problems. It was heart breaking to see. She kept prying as to where we lived and such. We gave a little as possible, being protective we feel at this point we must error on the side of caution.
Today when Duck gets home I'm going out to buy a big bottle of Calicum vitamins and some chewables for myself and the kids. I just can't swallow adult vitamins. We ahve to start eating better and exercising, I want to live past 55.
Well I need to get started on house work. I've got a lot of laundry to catch up and some dishes to do. I need to get things done and hopefull can some veggie soup.
Gotta scoot.
