Life Changing day!

First we will start with Riley: The doc said that he does not have Epilepcy now, this is something that could change in the future (how ever you spell that). Okay so that's the good news. The MRI came back normal...another sign of good news. The EEG came back abnormal. It showed signs of slowing brainwaves at times. While these weren't enough to consider them seizures, they were enough to consider them abnormal. If he has more visibile or more intense silent seizures we will have to do a sleep study and a 24 hr. EEG. We are waiting on his blood test results, I will have to dig in and do a bunch of follow up, this is important at this point. Critically so. If he is dumping too many proteins in his blood to, we will have to speak with a kidney doc and a dietician. Sunshine will have to change his diet and we will have to monitor more closly what he eats. By the way..stupid fact of the day. Did you know that 5 gummy worms have 3 grams of protein in them. Good thing to know if you are ever lost in the woods for an extended amount of time and only have gummy worms to eat. I'm very happy with the help that Dr. S gave us. While we are back to square one, we know that it isn't necessarily his brain causing the problem. We are going back to diet now. We need to see what we can do. I guess it is time to look up diet and autism.

THen we went to Duck's aunt house. Everytime we are there she keeps telling me we should apply for disability for him. Why? Why is it any of your business? I can understand the first or maybe the second time, but I don't need her doing research for me telling me that I quality when I've been told by other not to waste my time, he doesn't. We don't need it anyway. While we struggle a bit when we make bad decisions, Jah takes care of us. He provides everything we need and when we seem to need a bit more he shows us how to make it. Them more money you have the more problems you have PERIOD. Granted I say that and I asked for more money at work, only because when Duck looses his unemployment we will not make enough to pay our basic montly bills. I'm only asking enough to pay my bills, everything else we will have to worry about then. Which is another reason as to why my pantry is stocked and my freezers are overflowing...literally.

We then met up with my very prego friend K who gave 3 of us hair cuts. It has been two years, she said I had a lot of breakages, but I needed to switch shampoo and conditionars every three days. Like use Suave (which has a high alcohol content) for two days and then use a better one the 3rd day. This would help, I'm going to look into this too! We had fun we first met up for lunch and then we to the salon. Sunshine didn't freak out as much as he usually does. Of course he wasn't asked to sit in the chair either. It was so nice to see her. When she has the baby I'm going to go up and see her. She did the same for me, she was one of the only ones who visited me in the hospital when I had Sunshine. Even my best friend at the time didn't come up. K has really been a good friend over the years.

Then we met up with JM, it was so much fun, I haven't seen her in 18 months. She bought us dinner and we sat at Pizza Hut for about 2 hours talking. I got to give her a wonderful witness, she asked questions and I had the pleasure of answering. It was truly moving! I love her to death, she has always been there for me through thick and thin. She is a wonderful and amazing woman.

Then we decided to meet up with my mother. We called Aunt S for the number since I forgot to write it down and quite frankly I thought we'd be leaving town well before then. So we met up with them at McDonald's she looks terrible, sounds terrible. I'm really happy she could see her grandchildren. She has osteoperious (again spelling), diabetes, emphazema and a slue of other problems. It was heart breaking to see. She kept prying as to where we lived and such. We gave a little as possible, being protective we feel at this point we must error on the side of caution.

Today when Duck gets home I'm going out to buy a big bottle of Calicum vitamins and some chewables for myself and the kids. I just can't swallow adult vitamins. We ahve to start eating better and exercising, I want to live past 55.

Well I need to get started on house work. I've got a lot of laundry to catch up and some dishes to do. I need to get things done and hopefull can some veggie soup.

Gotta scoot.

Stranger things have happened.

So after Duck got home in from his bible study with TL, we were of to the hardware to buy a new dish washer. Right before we were walking out the door I checked FC and sure enough there was a lady who was offereing one that was less than a year old. I sent her a message and left a phone number. On the way into town she called. I now have a new used dishwasher and a new microwave stand.

We'll see how it works out!

Night, off to Riley tomorrow.

Katy

A couple of days.

It has been a couple of days, but that's how it goes. I've been working hard trying to keep the few hours at work I got this week and trying to hang out with the family. Duck is back in the swing of staying up till 3, this doesn't work when he needs to be getting up around 7 or 8. He still isn't in the swing of his new school schedule yet either. This semester is proving to be rough already. I think we need to sit down a make a week to week plan to get thing moving in the right direction. We go back to Riley on Tue. I'm really looking forward to the results. I know that sometimes I'm not exactly happy with results that I get from there, and that some people plan don't like Riley, but I wouldn't trust any other hospital like I do Riley. I've learned that as a parent you must not stop asking questions until you understand. No matter how irriatated someone may be, it is our jobs to ask questions and make sure that we can care for our children after we leave.

I think I'm going to take a quick nap before I leave for the meeting. It would be nice to be able to wake up and do my lesson. Right now I can't keep my eyes open.

Katy

The call...

Yesterday I rec'd a voicemail from the lab at Riley. I returned the call late knowing that they'd have to call me back. Well this morning they called, Sunshine's genetics test showed an unusually high level of amino acids and they now need a blood test to confirm and test further. Yipee. This is NOT going to be fun at all. I'll take him to the local hospital tonight to get it done. I may have to wait until tomorrow morning depending upon when we get back. I spoke with Dr. S's nurse L yesterday, they finally took into consideration that he won't take a liquid med and called in a pill seroid for him. At this point the poison ivy is clearing up. I guess I'm wondering if the steroids in his neb would do the same as the ones he takes orally. Hum...something to question next visit. We will need to see them next week after his apt at Riley. I'm anxious to hear the results. I'm really impressed with the neuro doc that we were assigned to. Helpful and knowlegdeable beyond all belief. Now if I can just get a resp doc that will do the same. I want to know if Sunshine will always have asthma. He was diagnoised at 6 mo old and has been struggling ever since. Smiley was diagnoised at 1 month old and has only had one attack. It seems that he may have grown out of it as most kids do.

Duck is already off to school, probably pulling into the drive about now. We are going to pick up some rain barrels that we found for $5 each. I think I'm going to get 4, maybe 5. Since I'm going to plant the corn on the opposite side of the yard next year, I will need to water them too! The beans are coming up well, I picked all the pumkins the other day, I'm waiting to see if the new shoots produce anything before I pull the plant. The only thing that is producing now is the peppers. I will finish pulling the tomatoe plants and put all the corn stalks in the compost later this week. My compost bin is full, I will need to get some straw and coke, in my research, this will help the compost process work faster. I'm looking forward to canning the pumpkin, I've gotten rid of almost all of it at this point. We also made some VERY GOOD salsa the other day. I'm thinking that I'm going to can some great norther beans and rice and them pour the salsa on top. That sounds yummy for some reason. I'm going to make more beans soup tonight, I think I need to run out to S's for more canning jars. I'm nearly out and my selves are full of food, but I can't let what I have left go to waste. I will also take her some spaghetti and chili. I do wish Duck had not taken the truck, I could've done that while he was gone after my bible study. I guess that will give me time to take care of the bean soup. I still haven't gotten around to the potatoe soup, it requires a lot of time and I'm not read to sit down and do it all. I will do my best to do it on Monday.

Well I need to get off of here and get ready for company.

Toodles..
Katy

Riley

Yesterday we were at Riley all day. Two apts took FOREVER. The nuerologists office never called us for give instructions so Sunshine wasn't sleep deprived as he should have been. All in all he once again proved how smart he actually is. He was briefly watching House of Mouse which he had never seen before as we don't have cable or satelite. While watch it he figured out how they were doing things, so he said, "Hey Mom, watch this!" He proceeded to pretend to pull letters out of his shirt, counting the, "One, two, three, four, five" the he said look it's ..... and he spelled his name. (For safety purposes, I won't spell it out) He didn't care for being put out for the MRI, took too long to wake up from the anesthesia and bounced back faster then expected.

So after we got done, we went to take care of the goats and animals. I tell you, I wonder if I get hazard pay or worker's comp. Last night I got horned in the arm and today I got head butted, head to head. Star isn't giving me much milk, and Fenchy while giving me more, doesn't seem to be producing much either. Although I did finish by hand milking her. By the way, K if you read this, Flora looks like she has milk, what do you want me to do? I'm going to try to call you later tonight, incase I forget.